“Never Stop”

I woke up this morning wondering why I do these things to myself. 

It is a beautiful Saturday and I have a fairly open schedule today; sleeping in and a leisurely start to the day were definitely possible. But no, not for me. I decided to sign up for a 4.2 mile “fun run” in honor of the Pat Tillman Foundation. People, I am six weeks away from a college reunion and I need to kick my fitness game into high gear. So with that in mind, when I heard about this event, I registered.

Today was race day and I was apprehensive. Did I really have it in me? Could I go this distance -which for me was not insignificant - without running out of gas? There was only one way to find out. 

I arrived to find the typical pre race activity. Music playing, tents from different sponsors spread around, people stretching and warming up. I felt the feelings I typically feel at these events: I don’t belong here. These other runners look strong and I don’t look or feel strong. But. I’m here. So let’s do this. 

The race began and I worked to find my position in the pack and keep my own pace. I had my music and I found my rhythm. Many of the other runners were obviously active or formerly active military. There was a lot of evident patriotism and camaraderie. I began to think about Pat Tillman, the man in whose honor we were running. 

Pat Tillman is a hero. He was football star for Arizona State University and went on to a successful career in the NFL with the Arizona Cardinals. In the aftermath of the September 11 attacks, Mr. Tillman sacrificed his career to enlist in the military and trained to become an Army Rangers. He served several tours in Iraq and Afghanistan before he was tragically killed April 22, 2004. Posthumously, he received the Silver Star and Purple Heart medals.

I have always admired Pat Tillman’s story. While many of us watched in open mouthed horror the worst terrorist attack on American soil and felt helpless, Pat took action. He left a life that he worked hard to earn, but provided him wealth and fame, and chose to fight for our nation and defeat Al-Qaeda. Brave seems too small a word for his story. 

His mantra, “Never Stop” was emblazoned on all the runners T-shirts around me. The mantra represented his belief that carried him through two a days in football training camp and basic training when he enlisted. His number, 42, just like Jackie Robinson, has been retired by ASU and the Arizona Cardinals and is why today’s race, and the ones like it around the country, are 4.2 miles. 

So I ran thinking about things like bravery and sacrifice and fear and choice and I remembered someone I’d met yesterday at Northside Hospital. 

Yesterday, like so many days, I was called to Northside Hospital to speak with a family about hospice and palliative care. Not their best day, to be sure. As I walked to the elevator in the parking garage, I noticed him, next to the “YOU ARE ON P2” sign.

Let me explain this: the hospital is under construction. It is always under construction. When one arrives, you enter the parking garage on P4, but typically need to go to P2 or P1 before you can find a spot. Then you need to take the elevator to P5 to get to the main floor of the hospital which is ‘G’, not 1. How could anyone possibly be confused?

So when I saw him in front of the “YOU ARE ON P2” sign, holding a bright pink terry cloth duffle bag, and looking like he’d missed the chance to comb his hair that day, my spidey senses told me he was going to need some help. We got on the elevator together and my instincts were proven correct when he got off on P4, looked around and said, “this CAN’T be right” to no one, in particular. 

“Are you lost?” I said (a really loaded question, in hindsight…)

“They said she was on 4, but…”

“Right. We have to get to the hospital first. I’ll show you. I’m going there.”

My new friend got back on the elevator with me and the doors shut in front of us.

“425,” he said.

“OK,” I said.

We got off on P5 and began to walk towards the main hospital elevators. And then without any question from me, he said just one word.

“Leukemia,” he said.

“I’m sorry,” I said.

We walked some more in silence (it’s quite a trek) and then my friend seemed to awaken for a moment and he asked me if I was here to see someone or did I work at the hospital. When I started to explain to him that I’m a nurse that works with a hospice organization he recoiled as if I had opened my purse and pulled out a snake. I attempted to recover by explaining what an excellent hospital Northside is. As we arrived at the elevator bank, I happened to see his face as he looked at the directory on the wall and realized the fourth floor, where he would find room 425, was the medical intensive care unit. My new friend stiffened. His wife, the owner of the duffle bag he dutifully carried, was in a battle.

As we stepped on the elevator, I thought what a perfect place hospital elevators would be for a basket full of puppies because the tension can be thick. People wordlessly come on and off and ride up and down awaiting their deployment when the doors open and they are back in the fight. 

We stopped at the third floor and I explained it was my stop. I turned and touched my friend on the arm and wished him good luck. We made eye contact for just a second and I saw the look with which I’ve become awfully familiar.

It says I’m going to need more than luck. I’m scared. I don’t know if I can do this. I don’t feel strong. I don’t have a choice. 

“KEEP GOING!!” “YOU’VE GOT THIS!” “YOU’RE AWESOME!”

I’m snapped back into my race as the volunteers who awoke today equally early, just to cheer us, provide the needed and appreciated encouragement for us runners. So very grateful for them. I kept running.

As I ran, I thought about Pat Tillman and my friend in room 425 at Northside and about all of us. 

On the morning of September 11th, 2001, Pat Tillman awoke just like the rest of us- blissfully unaware of the horrors the day would hold. He was a remarkable competitive athlete, but he was just a man. But as an American, he was attacked that day, through no fault of his own, and nothing would ever be the same for him again. When he went to bed on September 10th, Pat Tillman had no idea he would be in Iraq or Afghanistan within a year and he certainly didn’t think he would be dead in the next three. September 11th he was called to battle, brought to unknown places and asked to be braver than he probably ever thought he could be. As he saw it, he didn’t have a choice. 

My friend I met yesterday isn’t all that different. His wife’s leukemia diagnosis was his September 11th and Northside Hospital is his Afghanistan. He, and his wife, are in a battle they didn’t ask for and they have to be braver than they ever thought they could be. And while my friend appeared somewhat disheveled at our encounter, who’s to say he isn’t the Pat Tillman of his field? Maybe he’s a captain of industry, maybe he’s an accomplished musician or published author. I have no idea  what he used to be, but I promise you that up until recently, he didn’t picture himself wandering lost in a hospital parking garage carrying a pink terry cloth duffle bag.

And what about the rest of us? What battles do we face day in and day out that may not be as dramatic as a terror attack or a devastating diagnosis, but tax us nonetheless? Whether it be challenges you face in your relationship, at your workplace, as a parent, don’t we all find ourselves lost on the battlefield of life at times, wondering if we’ve got what it takes to keep going.

Never Stop. Just like Pat Tillman said. And repeated. And reminded. Never Stop.

He also said, “Somewhere inside, we hear a voice. It leads us in the direction of who we wish to become. But it is up to us whether or not to follow.”

For Pat, the voice led him to fight for our country and he paid with his life. His everlasting legacy is legendary bravery. For my friend at Northside, I think the voice was leading him to do his very best to put one foot in front of the other, show up for his loved one, and take the hit. It’s really no less brave.

And for me, today, the voice led me across the finish line. I did have it in me. 

What’s your Stone?

Happy Easter, HOPEspotters ! ( Don’t go away non Easter celebrators.) Today is a day of HOPE for all of us and I am inviting you to the church of hope, a place where I preach. I have a message I want to share and I think it is for us all. I believe a story of overcoming and rising has a universal appeal and a timeless application. And I LOVE stories.

So without being biblical, as I am no one’s theologian, let’s just review the story. Good Friday: Jesus is crucified and dies. Placed in a tomb that is sealed with a stone. Holy Saturday, we sit and wait. I’ve already written about that as the day we need to hold space for each other. Easter Sunday, the disciples, the friends, show up at the tomb of their friend and the stone has been rolled back, the tomb is empty. Jesus is resurrected and the miracle becomes legend. 

For those that believe, the miracle of Jesus defeating death has been the basis of their faith. It’s an answered prayer, a promise fulfilled.

But this is the church of hope, preached by me and I’m only asking for attention to the story, not the theology. The story is Jesus was crucified by people who didn’t believe in Him. He was dead. Placed in a tomb by those that loved and mourned Him. Not one of them expected what they would find on Sunday.

In this story, the message is deep and wide and loud and clear. 

The stone was rolled back. After the miracle, being trapped in the tomb was not tolerated. 

I’ve been to church on Easter almost every year of my life and I’ve heard about the empty tomb. I’ve yet to hear (and if I’ve missed it, shame on me) discussion on the events in that tomb. Like, what EXACTLY happened? Jesus was lying in there dead and God’s miracle came and restored life to Him. Jesus woke up after a hideous crucifiction ALIVE.

But what happened next? HOW did the stone get rolled back? Scripture would have you believe it was a very large boulder that sealed this man’s tomb. Who took care of the stone?

In my head, the details are clear: Jesus woke up and recognized the miracle bestowed on him. The opportunity. The second chance. But the boulder that sealed his tomb remained. It was dark. And confusing. Maybe Jesus cried and thought, “why am I STILL in the dark??”

The burden of a miracle is ia gift that should not be wasted. It was decision time. What to do with this massive stone? 

The newly resurrected man knew with certainty. 
 
With human grit and renewed determination, Jesus rolled it back himself. 

In my whole heart, I believe there was an epic battle in the tomb on Saturday night/ Sunday morning. Jesus, fresh off a resurrection, gathered up more strength than he thought he had and pushed and sweated and shoved and moved that stone. God’s miracle was to bring Him back to life. Moving the stone was all on Him. 

It wasn’t easy. Budge, push, wiggle, move. A crack of light provided new determination. 

Scripture assures us, He got out.

My HOPEspot friends, let me bring you back to my prayer for you:

ROLL. BACK. THE. STONE.

DON”T LET CRUCIFIXION END YOU.

IT’S NOT EASY.  You. MUST GET OUT.

What am I saying? WHAT IS YOUR STONE?

Friends, I believe we all have stones that keep us locked in our tombs. Despite the miracle of second chances that we’ve all been granted, we remain in a dark tomb. All of us. Even the best of us.

What are our stones? What seems to have crucified you? Addiction? Anger? Lack of forgiveness? Denial? Fear? Feelings of inadequacy? Hanging on to a bad situation? Stones that keep us in a tomb and away from the life of our dreams.

 Big. Bad. Stones. Stones that keep us from celebrating our miracle of second chances. Crucifixion did not define Jesus.  It shouldn’t  define us. 

I have a really brave friend. This friend has a child who struggled with some anxiety, crippling at times. My friend made the brave choice to send her child to a place that treated her around the clock and ultimately healed the child.

Talking to my friend about the hard choice she made, she admitted that she had resisted the “last resort”. In hindsight, my friend wished she had succumbed earlier to what finally was the ultimate solution. My friend’s tomb was dark. Her determination to move the stone was nothing short of heroic. 

And it is all over literature and the arts..

Jean Valjean in Les Miserables, perhaps the greatest character  ever to exemplify redemption, sang, “My soul belongs to God, I know I made that bargain long ago, He gave me hope when hope was gone, He gave me strength to carry on.”

The wise and wonderful Dr. Seuss reminded us, “You have brains in your head. You have feet in your shoes. You can steer yourself any direction you choose.”

My Easter plea is for each of you to name your stone, the one that keeps you trapped in the dark, scary tomb.  Place that stone against your feeling this Easter morning and play the Jesus. Wake up. Recognize you’ve been given a miracle. Look that stone in the eye and start to rock that bitch.

I know it isn’t easy to find yourself in the dark, realizing that you have the gift of potential. You aren’t the first to struggle with that. Push, shove, dig deep thinking about all those that love you and WANT you out of that tomb.

We need you out of that tomb, friends. You can’t possibly imagine the glory and the love and the celebration that await you on the other side. So get to pushing. 

What’s your stone?

Roll it back. 

 

"Don't Walk me In!"

HOPEspotters- be gentle with me. I’m tired. Today was a milestone morning. Ryan, my first born (14 y/o) left for his 8th grade trip. 60 hours away touring the state of Georgia with his classmates and some very saintly teacher chaperones. The itinerary would make a Navy Seal question personal stamina, but it is a long awaited “privilege” for the graduating middle school class. So today was the day and there was a mixed bag of emotions for both Ryan and me: anxiety, excitement, concern, joy. But at drop off time of 6:30 AM, we were just doing all we could to get there in one piece.

A disclaimer: I recognize my well prepared, well protected son was going on a school field trip and not leaving for Afghanistan. I get that. Really, I do.

Preparations for this trip began months ago and I’ve had off the charts anxiety every step of the way. My anxiety was really not at all rooted in Ryan’s safety or homesickness or anything other than, “Dear God, don’t let me miss a deadline, forget an essential item he is assigned to bring or do ANYTHING to mess this up.” That is the essential prayer of most middle school moms. It varies a little, but not much.

In the last week I have been scurrying around as if Ryan was going to Pyeongchang, driving the bus, with no possibility of communication or enduring any discomfort for 5 minutes. Yep, I fell in the trap. Guilty as charged. Helicopter Parent Buckley, reporting for duty.

Last night, Ryan and I packed together and proceeded to, of course, argue. “Why do I have to bring that?” “Why can’t I bring that?”  And the ever popular, “OH MY GOD, MOM!” Don’t even know why, but it was said A LOT.

So the school sent multiple messages for absolute clarity: DROP OFF IS 6:30 AM. FAILURE TO BE AT THE SCHOOL AT THIS TIME MAY RESULT IN YOUR EXECUTION. I exaggerate- but not much. Again, my primary goal was not to mess up any part of this for my beloved first born.

Ryan isn’t great at waking up. (Holy understatement) So I spent the night waking up every hour on the hour making sure I wasn’t late in working to get him up and in the shower (yes, I do, in fact, keep my helicopter in the backyard. Thanks for asking). When my alarm finally went off at 5:20 AM, I was up and working on the traveler. Lights ON! Shower ON!

And remarkably, we were ready on time. While he got ready, I felt like I did some really incredible things. I changed out of pajamas. I put on a bra. I brushed my teeth AND put my hair in a ponytail. I double checked that everything was packed and labeled his bags with his name. Still don’t know why the Mother of the Year award givers haven’t come to find me today. But, whatever…

We got in the car and it was a lot like a regular morning: Ryan on his phone and me listening to sports radio. Typically, a morning like this would conclude with me pulling into the carpool lane and with attention to alacrity, Ryan would jump out of the passenger seat, get his backpack from the back seat and say goodbye while heading into school.

Today, however, was a milestone day and I could sense the specialness. So when I arrived at the school, in the cold dark, at 6:20, I made some observations.

The first thing I observed was somewhat shocking. As I got closer to the front door and observed parents getting out to help their student with luggage, I saw many mothers IN OUTFITS. They were dressed. And I think they were wearing makeup! Who are these magic people? Did I mention it was 6:20 AM? Were they leaving here to appear on the TODAY show? Perhaps they don’t appreciate the subtle, yet thrilling, art of driving in the dark with one eye glued shut from yesterday’s mascara. This was shocking to me. I was reeling. Was it not enough that I put on yoga pants AND A BRA? Serious, M.Fing overachievers.

The next thing I observed was that to which I paid close attention. This drop off wasn’t like regular carpool with the school resource officer waving you on so as not to create delay. “Eject your student and proceed, please.” And I am nothing if not a rule follower! But what I watched in the cars that went before me was an undeniable pattern: student AND parent left the car. Parent handed luggage to student, student hugged parent, parent returned to car and the next in line was promoted.

I was not going to mess this up.

So when Ryan and I pulled up to the “departure slot” he got out of the car, and opened the back seat to get his bags. I put the car in park and walked around the front of the car to approach him. I extended my arms, ready to say, “have a great….”

“YOU’RE NOT SUPPOSED TO WALK ME IN! YOU CAN’T WALK ME IN!”

And with speed that can only be compared to Usain Bolt, Ryan darted in the front door.
 

I stood there with arms outstretched for only a second, but I probably looked like Frankenstein. Given the hot fear that one could see in Ryan’s eyes, that must be true.

I messed it up. I messed it up.

And in the next second, God winked at me with the all the humor and irony that only God can deliver. Embarrassed, I dropped my arms and smoothed my jacket. I glanced into the windshield of the driver behind me and, of course, it was her. OF COURSE, it was her.

Who’s her? I don’t know her name. I’ve seen her one thousand times since Ryan was in kindergarten but I swear we’ve never met. She stood out to me on this morning because two weeks ago at the MANDATORY parent planning session for this trip, she asked a question. This anonymous woman raised her hand and asked, “When do the students get to pick their roommates or when will they know who they are rooming with?”

When this loving, probably tired, trying not to mess it up Mom asked this question, many of us looked at our feet. Oh my goodness. They chose roommates one month ago. That’s already decided. Doesn’t she know? Well, even I was aware of that.

And I swear I did NOT judge her - but I will confess her lack of knowledge on this point really made me feel better on the scale of “how much do I know about my tween?”   

So on this morning, in the cold, when I dropped my Frankenstein arms and caught her eye, I understood. This mothering of growing up kids thing is really hard. And sometimes awful. But always hard.

I drove home humbled. Profoundly humbled. And I prayed for the wisdom to let my son grow with grace and faith and not fear and white knuckles, which seems to be my approach. I’ve been blessed beyond measure with a son who seems to have a limitless future. My original mission was right in its simplicity: don’t mess this up.

So I came home in time to put my 11 year old son on the bus, who let me walk him RIGHT UP to the stairs and I said a silent prayer of gratitude for that. And then I got on the treadmill and soothed myself with the following knowledge:

Dear Ryan:

I am sorry I messed up the goodbye moment. Rookie mistake.

You left so quickly I didn’t get a chance to tell you that I wasn’t planning on actually walking you in. Even I know better than that.

But I need you to know this: I will ALWAYS “walk you in” because from the day you were swaddled and placed in my arms, we became a team. I really hope I’m not going to be one of those creepy boy moms (your aunt will make sure I’m not) but if you think for A SECOND that I am not with you every step you take, you are mistaken. More and more, I won’t physically be there, but I am in your heart and you are in mine.

I’ll walk you in to high school, to college, to your first job, to your wedding chapel, to your future. I will remember my place and I’ll keep my Frankenstein arms at my side, but be clear on this, my love, I will walk you in.

And tonight, when you are bleary eyed exhausted and put on your pajama pants, you will find a note in your pocket. It says, “Hope you are having a great time. I love you. Mom.”

You can roll your eyes all you want. I’ve walked you in.

Peace out, Mamas. I think today reminded me, if nothing else, you CAN'T mess this up because there really is no way to do it “right”. Just do it with love.


 

Survivorship

HOPEspotters:

One of the things I am proudest of on my life resume is the bullet point that belongs to cancer survivor. I’m proud of this ascription, not because of all I did to make that possible - that was really all done for me -but because I know survivorship is a privilege and I’ve  tried to use my experiences for the powers of good.

I’ve been a cancer survivor for 32 years, so I am more experienced in this role than I am as a nurse, a wife, or a mother. As a teenager, I was embarrassed by the title and the attention that came with it. I also understand the role of daughter of cancer survivor (both parents)  and sister of survivor. As a professional nurse, I am grateful for the insight and empathy I believe the experience has provided me.

 I also understand that my cancer diagnosis was not likely fatal, which eliminates a lot of fear. (I’m not sure my parents felt that same comfort at the time of my surgery and treatment.) Additionally, I am clear that my diagnosis was extremely unusual for my age:  unusual has brought with it a lot of uncertainty. 
 
I’m tight with survivorship and the benefits and responsibilities, freedoms and fears that come with the “award”. Someday, in fact, I hope to write a book on survivorship. Personally, I find the experiences of survivors - young and old- both positive and negative - fascinating and important. 

I have always said throughout my cancer experiences I was blessed with: knowledge, advocates, and outstanding family support that included financial resources. It has never been lost on me the fear that newly diagnosed patients must feel that don’t have that trinity of power in their back pocket.  

Today, however, I want to share with you a letter I’d like to send, one of the many I’d like to have sent over the years. I write these never to be sent letters because as an adult survivor and as a healthcare professional, my biggest sadness, shock, frustration has been the black hole that survivors get dumped in, all the time screaming, “what next?”

Recently, I had a CT scan. Six days ago to be exact. The purpose of the scan was to assess the status of my lungs as compared to the last CT scan five years ago. To be clear, I don’t go through life afraid of what might happen next with my old and probably harmless thyroid cancer remains. I’m far more scared of a new and livelier cancer and my job can feed that fear each and every day. But I have this annoying voice in my ear, that I call common sense, and it says, “you have to follow up, Jenny. You are a mother, Jenny.”  So I listen and I hunt around to find a doctor that has seen “people like me”.  And I take the time and spend the money and ask for the scan because it seems like the most prudent thing to do. 


Dear Dr. X:

I am (imaginarily) writing to you to determine if you have received the results of my CT scan from last Wednesday.  

Before I explain to you my disappointment over not having had any contact from you yet, I’d like to “catch you up” on the events of my “CT SCAN DAY”. (I like to write it in all caps and pretend it is a holiday since it cost me $2700 -out of pocket.)

I saw you in your office two months before the “big day”. You repeated what we both knew. My cancer, at my age, was unusual and there’s not a lot of research that you know, if something changes. I suggested we do a CT scan to see if anything had changed and you agreed. (I really don’t like calling the shots).

I waited two weeks before asking your office where my CT orders stood. I was told you didn’t feel like it was necessary. I asked why and then I was told you would order the CT. (Confidence level: ZERO.)

I’ll spare you the details of the hospital’s failures on my big $2700 fun day. (That’s a different letter for them). What I will share with you is this: no one asked me why I was there, what problems I may or may not be having, or why I was having this study. 

Having been diagnosed with lung metastasis in 1985, I’ve had A LOT of CT scans. We’ve discussed the peculiarity of my situation. Every CT study I’ve had has taken 45 mins or more. This study- on my big fun $2700 day- took 8 minutes, with and without contrast. 

Dr. X, either they didn’t do the study correctly or you didn’t order it correctly. I wouldn’t know, however, because you haven’t called me. At all.

Dr. X, I may not be a doctor but I understand the difficulties of responding to multiple acute patients. I understand triaging responses. Your silence, regardless of how insignificant you see my study, is inexcusable.

Because here is what I know about you now, Dr. X, with absolute certainty. You don’t get it. 

You. Don’t. Get. It. 

And I don’t want anyone who doesn’t get it anywhere near me.

Please send me my records. Please accept in exchange my best regards that neither you nor a family member of yours receive the negligent care that you offer, in a time of need.


DO YOU GET IT? This, I believe is the question that sits in every survivor’s heart. Pride and fear keep it from passing their lips.

Do you get it that my left thumb is tingling and I have NO explanation for that but I am only one year out from colon cancer treatment and I am scared out of my mind?

Do you get it that my spouse has ceased to see me as an attractive viable partner and now doesn't ‘want’ me because I’m ‘sick’? How do I handle this?

Do you get it that I am an extremely reasonable and logical woman but it feels WEIRD that you bring me in for breast cancer follow up but we just talk? Do you have X-ray vision?

Do you get that I am ashamed by my anxiety because I am strong and capable? What do you expect for me? PLEASE don’t make me ask.

Do you get it? Do you get It ? Do you get It? DO YOU GET IT THAT I AM TRYING TO KEEP MY COOL AND BELIEVE I AM OK AND UNDERSTAND WHY THE FUCK WE ARE NOT RUNNING ME THROUGH A FULL BODY SCANNER? YOU SEEM CALM. I WANT TO SEEM CALM. BUT LOOK AT THE GOD DAMNED OBITUARIES. IS IT ME? WHY AREN’T WE GOING HEAD TO TOE?????
 
As survivors we will never forget the moment we were told, “you have cancer” or “your results were atypical” or the mother of all cowardess, “your results weren’t as positive as we hoped”  (WTF.. did you want more positive malignant cells??)

I told my super sage sister recently that I plan to buy a beret and a black turtleneck so that I can look legitimate starting a revolution.

A revolution begins when people feel unheard and under represented. Cancer survivors could accrue in the millions to take up this cause.  I certainly don’t have all the answers but life has given me explicit familiarity with the questions.

Why do we, as survivors, feel so unguided?  How do we, as survivors, streamline common sense with present medical protocols. And finally, how do we continue to support the survivor community and learn from them?

 Survivorship is undoubtedly a blessing. Many are denied the privilege. With it comes responsibility and most survivors I know, understand that. Cancer robs us of many things - innocence, naïveté and, frankly, acceptance of bullshit. My army of survivors doesn’t have a lot of time for platitudes or protocols or just because’s…

Sadly, I don’t yet feel in 2018 that we are truly winning the war on cancer, but I can’t deny there has been progress. One of the ways progress is best seen is in the growing numbers of survivors. People who have battled- fiercely- while terrified- but have heard the words “you are in remission” or “we believe you are cancer free”. (Movies will depict these proclamations with violins and crescendo music, but the fact is most doctors mumble these words because even they are scared to say them out loud). 

My imaginary letter to my doctor is admittedly angry but no less than a call to action for the army of survivors. Here is my letter to them:

Warriors:

God bless you for your struggles. Praise God for remaining in the population that could receive a letter to survivors. Too many were denied the privilege.

Please take on the responsibility of survivorship. That responsibility includes continuing self care, following up on your status in spite of how scary that is, inspiring those in the battle and advocating for better ways to care for the army of “us”- survivors.

We are unique. We are blessed. We have battled. We were scared. 

And when you meet Dr. X, and his colleagues, remind him that we make them look good. They owe us care and attention and more than “you were lucky”. We are entitled to understanding of our difference and celebration of our second chance. 

Most importantly, we, Survivors, pray there will be more like us and none like the alternative. No matter what.